President Barack Obama Signs 21st Century Cures Act
President Barack Obama signed the 21st Century Cures Act into law on December 19th. The new law will provide billions of dollars to help accelerate the discovery, development, and delivery of promising new treatments by funding research and streamlining the drug review process. Importantly, the bill also will help preserve access to complex rehab technologies (CRT) power wheelchair accessories.
The 21st Century Cures Act is groundbreaking legislation that has taken over two years of negotiations. Thank you to all of the ALS Advocates who wrote letters, made phone calls and spoke to legislators about the legislation. Because of your hard work, ALS Association priorities were included in the final legislation.
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Happy New Year From the Young Professionals Group!
We’re excited to announce that the YPG has made its annual donation the ALS Association Greater New York Chapter’s equipment loan program!
We are very happy to increase our donation to $2,500 this year, up from $1,000 in years past. This $2,500 will be used to purchase two different types of devices. Firstly, the Loan Closet will be receiving nine head mounting laser pointers for enabling communication for patients who have lost their voice and cannot point on a letter board. The second addition to the Loan Closet will be 30 call bell devices for patients who are unable to call for assistance from their caregivers.
We hope this addition to the Chapter’s Equipment Loan Program will help patients in New York and New Jersey live with ALS. The YPG works throughout the year to raise money for programs such as the Equipment Loan Program, an Advocacy grant, and a $5,000 research grant. We’re also proud of our Walk to Defeat ALS Team which this year raised over $12,600!
We hope you all have had a wonderful holiday season and look forward to heading into 2017 by your side!
Join our Young Professionals Group
The YPG generates awareness of the fight against ALS (Lou Gehrig’s Disease) by developing fun, sophisticated and meaningful opportunities for their peers to get involved in the cause. To find out about the next general meeting of the Young Professionals Group please email email@example.com. For information about the ALS Association's Young Professionals Group, contact Brett Murphy at (212) 720-3052 or firstname.lastname@example.org. Visit the YPG website here.
Matching Gifts: The Inside Scoop
Many companies allow their employees to direct their charitable giving programs through matching gifts. When an employee notifies the company that he/she has made a charitable donation, the company will make a gift of the same amount, and in some cases double the amount, to the same charitable organization. Matching Gift Programs are a wonderful way for employees to make their charitable dollars stretch farther at no cost to themselves.
your company is eligible, request a matching gift form from your employer, and send it
completed and signed with your gift. We will do the rest. The impact of your gift to The ALS
Association Greater New York Chapter may be doubled or possibly tripled!
For more information, call Ruth Wolcson, Gift Coordinator, (212) 720-3041 or email@example.com.
Sign Up For The
National ALS Registry
The National ALS Registry is an important tool
researchers can use in the fight against ALS.
People living with Lou Gehrig’s Disease may self
enroll in the Registry via a secure online web
portal at the Centers for Disease Control and
For more about the ALS Registry, contact
Christine Dunn in the Chapter office at (212)
firstname.lastname@example.org. Chris can also
help you with your enrollment.
In Need of Help?
If you are a patient, caregiver, or family member and need a little help to lighten your work load please contact us and we will request a volunteer for you. Volunteers can help in many ways - from walking your dog, shopping, or just reading a good book to you. Contact Christine Dunn at (212) 720- 3044 or email@example.com.
Here's how you can make a difference.
Create a world without ALS by getting involved with The ALS Association Greater New York Chapter. Whether joining the Walk to Defeat ALS®, volunteering your time to support the ALS community, or sharing your story to honor our loved ones and spread awareness, there are plenty of ways to join the fight! Every action you take to Challenge ALS furthers our mission and accelerates finding a treatment and a cure for this devastating disease. For more information contact Kristen Cocoman at (212) 720-3048 or email firstname.lastname@example.org.
The Greater New York Chapter continues to be on the front
lines of policy debates that shape the lives of people with ALS. From healthcare to research to veterans affairs, The ALS Association Greater New York Chapter is at the table on the federal, state and local levels of government making the concerns of ALS patients and their families and caregivers known.
If you're interested in joining our advocacy efforts, please contact Regina Ackley, Chief Operating Officer, at (212) 720-3047 or email@example.com.
We need volunteers to help our patients and their families. Some PALS may need help with daily tasks; families and caregivers of our PALS may need help as well to lighten their work load a bit. There are so many ways to help - from watching a movie together or reading, or even helping with some household chores.
If you are looking for a way to get involved please click here to learn how you can help people with ALS. You can also call Christine Dunn at (212) 720-3044 or email: firstname.lastname@example.org.
Make a generous donation to find a cure, fund life saving research or to provide much needed equipment and services. To make a donation online, please click here or contact Regina Ackley, Chief Operating Officer, at (212) 720-3047 or email@example.com. To mail a donation, please address to: The ALS Association Greater
New York Chapter, 42 Broadway, Suite 1724, New York, NY 10004. Thank you for your generous support.
Our online Tribute Wall offers individuals and families a way to honor and remember those whose lives have been affected by ALS.
Through this online collection of photos, messages, and notes we hope to share the stories of the hundreds of people in our region with Lou Gehrig's disease. If you would like to share a message and a photo, please email your submission of the name of the person and a brief paragraph of no more 200 characters along with a photograph to firstname.lastname@example.org.
Find out instantly about the latest in ALS research,
advocacy efforts, special events, and patient services. Additionally, if you or
a loved one have a blog about living with ALS, please let us know. Stay connected.
You can find our chapter on social media: Facebook | Twitter | ALS Blog | YouTube | LinkedIn.
Find our Walk to Defeat ALS on social media too: Walk Facebook Page | Walk Twitter.
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