ALS Association Greater New York Chapter Names Kristen Cocoman New President and CEO

Cocoman has been affiliated with The Greater New York Chapter for over 15 years

NEW YORK, November 1, 2017 – Today, The ALS Association Greater New York Chapter announced that Kristen Cocoman will be the next President and CEO, effective November 1st. Cocoman has been with the Chapter since 1999, where she has worked with founding chapter President CEO, Dorine Gordon, and currently serves as Chief Development Officer.

“I am excited to take on this new role at the Chapter. I remain committed to the organization’s mission of providing compassionate care and support to patients and their families while relentlessly pursuing treatments and ultimately a cure for ALS,” Cocoman said.

The Chapter currently serves more than 800 people living with ALS, and is the largest Chapter in The ALS Association’s nationwide network, raising more than $6 million annually to advance patient services and research.

“We are thrilled to welcome Kristen into her new role. She has been a passionate advocate at the chapter for many years.  We are looking forward to continuing in the fight against ALS under her leadership,” ALS Association Greater New York Chapter, Chairman of the Board, Allen Popowitz said.

The Chapter sponsors global research initiatives, supports care services at five multidisciplinary ALS treatment centers, hosts seven Walks to Defeat ALS across New York and New Jersey and The Lou Gehrig Sports Awards Benefit which has become one of the premiere ALS fundraising events in the country.

About ALS Association Greater New York Chapter

The ALS Association Greater New York Chapter serves patients and families throughout the New York City, Long Island, Northern & Central New Jersey, and Westchester & the Hudson Valley. The Chapter plays a major role in promoting the mission to lead the fight to treat and cure ALS through global research and nationwide advocacy while also empowering people with Lou Gehrig’s Disease and their families to live fuller lives by providing them with compassionate care and support. The ALS Association is the only national non-profit organization fighting Lou Gehrig’s Disease on every front.

For more information about The ALS Association Greater New York Chapter, visit our website at http://www.als-ny.org, Facebook and Twitter.

2014 Marks The ALS Association Greater New York Chapter's 20th Anniversary

The ALS Association Greater New York ChapterThis year marks the 20th anniversary since the founding of The ALS Association Greater New York Chapter. On behalf of the Board and staff of the Chapter, I extend much heartfelt appreciation for all of the support we have received from the ALS community over the past two decades.

Twenty years ago the Chapter began with a few dedicated volunteers, who formed a support group in Manhattan, seeking to care for their loved ones living with ALS and share information and resources to help others. Today the Greater New York Chapter serves more than 750 patients in 26 counties throughout the greater New York / New Jersey region.

In the two decades since our founding, thanks to the amazing dedication of so many donors, volunteers, and exceptional staff, the Chapter now supports four multidisciplinary ALS clinics, hosts seven monthly support groups, organizes seven Walks to Defeat ALS, and maintains three equipment loan warehouses, loaning nearly 2,500 pieces of durable medical and augmentative communications equipment to our patients free of charge in the last year alone.

We have a committed team of healthcare professionals — nurses, social workers, assistive technologists — providing essential support and services to patients, families, and caregivers. These services span four regions throughout the metropolitan area — New York City, Long Island, Westchester County & the Hudson Valley, and Northern & Central New Jersey.

We continue to advocate in Washington, DC for greater support from our Federal government. Over the years we have successfully advocated for a waiver of the 24-month waiting period for Medicare benefits, changed regulations at the Department of Veterans Affairs to recognize ALS as a military service-connected disease, and have been at the forefront of the establishment of a National ALS Registry to better understand how many Americans are affected by ALS and why.

Our Chapter has contributed more than $7 million toward cutting-edge ALS research, which has resulted in some significant advances. We have funded the early work of some of today’s top ALS scientists in areas including stem cells, genetics, biomarkers, drug development, and clinical research. We are most proud of The Milton Safenowitz Post-Doctoral ALS Fellowship Program, which was established ten years ago to invest in young scientists to ensure growth and advancement in the field of ALS research for the future. We are encouraged that we are closer than ever to finding a meaningful treatment and a cure.

As we move forward, we ask you to re-double your efforts and become a Partner in the fight to end ALS and renew your generous support. Your contributions will help us continue the work of caring for those living with Lou Gehrig’s Disease, provide caregivers with the tools they need, enhance our Advocacy efforts, and continue critical funding for scientific research to bring about an effective treatment and a cure for ALS. Every gift makes a difference.

While we mark this milestone anniversary, we continue to look ahead toward a world without ALS. Twenty years have come and gone so fast, and along the way we have lost many friends to this terrible disease, but our resolve remains strong, as we honor their memory by continuing to fight ALS every day. We are so grateful for your support. Together, we have and will continue to improve the lives of people with ALS in our community.

Sincerely,
Dorine Gordon
President & CEO

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