In a striking achievement, researchers have taken ordinary skin cells from two elderly women suffering from Lou Gehrig’s disease, also known as amyotrophic lateral sclerosis, and have reprogrammed those cells to act like stem cells, the versatile cells that can grow into almost any kind of specialized cell.
The Time Has Come to Pass the ALS Registry Act!
We have great news…the Senate is expected to vote on legislation that includes the ALS Registry Act as soon as this week! This is what we all have been working for. And it means that it’s absolutely critical that you contact your Senators and urge them to join us in our fight for a treatment and cure.
Late yesterday, Senate Majority Leader Harry Reid introduced the Advancing America’s Priorities Act (S. 3297). The bill includes the ALS Registry Act as well as other legislation that has been blocked from consideration by Senator Tom Coburn. For the past several months, we have worked closely with Senator Reid behind the scenes to move the bill forward and now we have an opportunity to take the next step and pass the ALS Registry Act in the Senate!
This is the opportunity we have been working toward. And it may be our last and only chance to pass the bill this year, so we need your help TODAY.
A sample letter you can send to your Senators is available on the Advocacy Action Center (http://capwiz.com/alsa/home/) of our website. Please send the letter today and ask your Senators to vote for S. 3297, the Advancing
And please remember, only contact the Senators representing your state, for Senators are most responsive to their own constituents. If you don’t know the names of your Senators, don’t worry, the Advocacy Action Center will identify them for you.
After you send your letter, please forward this alert to your entire address book and tell your family, friends and colleagues to do so as well. We need as many people as possible to contact their Senators in support of S. 3297.
We will keep you up-to-date as the bill moves forward and the vote is scheduled. So please keep an eye out for our Action Alerts. We anticipate that several votes may take place and we will be asking you to reach out to your Senators before every vote!
We want to thank everyone in advance for their outreach. Together, we can pass the ALS Registry Act!
If you have any questions or would like additional information about this Action Alert, please contact the Advocacy Department at email@example.com or toll-free at 1-877-444-ALSA.
When considering a modified vehicle, the best choice for a PALS would be to invest in one in which the PALS can remain in a wheelchair while riding in the vehicle.
Purchasing an already modified, used vehicle is a good way to save money over customizing a new one. A good source for locating a used modified vehicle is www.disableddealer.com (888-651-0666). You can sign up onto their mailing list to get the magazine’s listing for vehicles as well as other used items for people with disabilities.
Another resource is companies that actually do modifications to vehicles. They often have used vehicles available on their lots. To find a local dealer in your area, go to www.nmeda.org, click on “Member Directory,” then click on “
A relatively new lease program might also be beneficial to PALS. The program, offered by Caraleasing, Inc., has long and short term leases, as well as an early cancellation option. (1-800-995-9123.)
Ride-Away, also has financing options that would be beneficial to a PALS. They offer a buy back program when the van is no longer needed and they also have used vehicles for sale. (1-888-743-3292)
At the ALS Association of Greater New York we have a van loan program but with only a few vans in rotation, it could be months or years before someone can get one through the program. Remember, the ALS Association Greater New York Chapter does not endorse any of the above companies or services, we merely present them as options for PALS.
For specific questions about vehicle modifications contact Assistive Technology Specialist, Antoinette Verdone, 212-720-3054 or firstname.lastname@example.org.
Assistive Technology Internships are available through the ITP program at NYU.
Last year we began a partnership with the ITP program at NYU to host assistive technology interns. ITP graduate program students work on projects with us to find innovative solutions to problems. Internships start in the Fall Semester.
If you have ideas for future projects for our Assistive Technology Internship program please email us at email@example.com or call 212-720-3054. As always, we welcome and encourage your feedback.