The ALS Association Greater New York Chapter is Holding the 8th Annual Walk to Defeat ALS on Long Island.

Long Island, NY – Continuing on the success of past years, The ALS Association Greater New York Chapter announces the date of Saturday, September 27, 2008 as the next Walk to Defeat ALS being held at Eisenhower Park on Long Island. Individual walkers or teams of walkers are invited to register for the Walk to Defeat ALS through the contact methods listed below.

The largest ALS Association Walk in the country, this year promises to be bigger than ever. Last year the Long Island Walk to Defeat ALS raised nearly $1 million, the most money raised by any Walk event of any ALS Association chapter in the United States.

We hope to do even better and with your help we can continue to raise funds for the care of ALS patients through services and equipment lending, and the funding of cutting edge research to find a cure.

Expected to attend this year’s Walk on Long Island is Q104.3 Radio DJ, Ken Dashow, and Sam Ryan, CBS Television Sports Anchor for CBS 2 News.

What: 2008 Long Island Walk to Defeat ALS
Where: Eisenhower Park, East Meadow, NY
When: Saturday, 9/27/08
Time: Check-in begins at 9:00 AM. Walk begins at 11:00 AM.
Contact: RSVP to Kristina, walk@als-ny.org or 800-672-8857
Details: To register and for more information, visit www.alswalks.org

About Amyotrophic Lateral Sclerosis (ALS):

Amyotrophic lateral sclerosis (ALS), often referred to as “Lou Gehrig’s disease,” is a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord. Usually fatal within 3-5 years, the disease deprives the victims the use of their bodies, eventually losing the ability to move, speak, eat or breathe on their own.

About The ALS Association Greater New York Chapter:

As one of The ALS Association’s leading chapters, the Greater New York Chapter plays a major role in promoting the mission to lead the fight to cure and treat ALS.

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For more information or to schedule media coverage please contact:

Jennifer Lowy, Director of Marketing & Special Events 212-720-3048, lowy@als-ny.org

Lon S. Cohen, Director of Communications 212-720-3058, lcohen@als-ny.org

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Matthew Gluck Runs

Matthew Gluck is running for ALS. Visit his website here to donate.

Here he is in his own words describing what he is doing to raise money and awareness for ALS. Proceeds will go to the ALS Association Greater New York Chapter.

I would like to introduce you to “Matthew Gluck Runs”. From April to Thanksgiving of this year, I pledge to run in 10 road races in the Tri-State area. Each race will be between 3.1 and 6.2 miles. My goal is to run a total of 50 miles.

How can you help? In one of three ways:

1) Be kind enough to sponsor me, by making a donation per mile, to The ALS Association. This organization is the only national not-for-profit health organization dedicated solely to lead the fight against ALS. You will do nothing – I will run my fat ass off, and you’ll send in a donation in November.

2) Run (or walk) with me in one of the races. If you choose to be a runner or a walker, I will make a donation for you, in your name, based on how many miles you run. I plan to run races in Long Island, Manhattan, Westchester, RocklandCounty and Northern New Jersey.

3) Do nothing, and hope I injure myself while running. That, as usual, will be extremely helpful.

Thanks in advance to everyone who chooses to help.

Best Wishes,

Matthew E. Gluck

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Felician College Men's Soccer Team Raises $1000 for ALS of Greater New York

RUTHERFORD, N.J. — The Felician College men’s soccer team, in conjunction with the New York Red Bulls of Major League soccer, raised $1,000 for research into amyotrophic lateral sclerosis (ALS) on Sunday, July 19.

The team sold 54 sideline level tickets to the Red Bulls’ game against the Los Angeles Galaxy on the 19th at Giants Stadium, enough for the New York club to donate $1,600 back to the Golden Falcons’ program. Felician gave a $1,000 check to the Greater New York Chapter of the ALS Association, and will use the remainder of the money for equipment and a storage shed.

“It was a fun event,” said second-year Felician head coach Patrick Snyder. “We sold tickets to alumni, family & friends, but also to Red Bulls fans with ALS and their families who found us on the ALS-New York web site. Everyone was treated to an exciting 2-2 draw, and we got to spread the word about the disease. Our guys saw how ALS affects those who are afflicted, but also how the money we’re raising can help them live more ordinary lives.”
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The Time Has Come to Pass the ALS Registry Act!

The Time Has Come to Pass the ALS Registry Act!

We have great news…the Senate is expected to vote on legislation that includes the ALS Registry Act as soon as this week! This is what we all have been working for. And it means that it’s absolutely critical that you contact your Senators and urge them to join us in our fight for a treatment and cure.

Late yesterday, Senate Majority Leader Harry Reid introduced the Advancing America’s Priorities Act (S. 3297). The bill includes the ALS Registry Act as well as other legislation that has been blocked from consideration by Senator Tom Coburn. For the past several months, we have worked closely with Senator Reid behind the scenes to move the bill forward and now we have an opportunity to take the next step and pass the ALS Registry Act in the Senate!

This is the opportunity we have been working toward. And it may be our last and only chance to pass the bill this year, so we need your help TODAY.

A sample letter you can send to your Senators is available on the Advocacy Action Center (http://capwiz.com/alsa/home/) of our website. Please send the letter today and ask your Senators to vote for S. 3297, the Advancing America‘s Priorities Act, which includes the ALS Registry Act. Let them know that by voting for this critical legislation, they can help us find a treatment and cure for Lou Gehrig’s disease. People with ALS don’t have time to wait!

And please remember, only contact the Senators representing your state, for Senators are most responsive to their own constituents. If you don’t know the names of your Senators, don’t worry, the Advocacy Action Center will identify them for you.

After you send your letter, please forward this alert to your entire address book and tell your family, friends and colleagues to do so as well. We need as many people as possible to contact their Senators in support of S. 3297.

We will keep you up-to-date as the bill moves forward and the vote is scheduled. So please keep an eye out for our Action Alerts. We anticipate that several votes may take place and we will be asking you to reach out to your Senators before every vote!

We want to thank everyone in advance for their outreach. Together, we can pass the ALS Registry Act!

If you have any questions or would like additional information about this Action Alert, please contact the Advocacy Department at advocacy@alsa-national.org or toll-free at 1-877-444-ALSA.

THANK YOU!

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