Why is the Walk to Defeat ALS so important to patients, caregivers, friends, and family?
Even more than the sense of community, love, and friendship on Walk Day, your support of the Jersey Shore Walk to Defeat ALS provides much needed care and equipment to patients as well as advancing research for treatment and a cure for this devastating disease. Each of our Walk Teams have their own unique stories about why they Walk each year. We’d like to share one of those stories with you about Team Never Give Up who Walk in honor of Mindy Rosenstein whose son, Noah, is the Team Captain.
My symptoms first began in 2013 and in June of 2015 I was diagnosed with ALS. With the love and support of my family and friends, I have maintained a positive attitude. Every day I have the choice to either feel sorry for myself or live my life. I chose to live my life and embrace each day with love and laughter.
Right after my diagnosis, I reached out to the ALS Association of Greater New York. The ALS Association of Greater New York sponsors the ALS Clinic that I go to at Columbia Hospital, a loan closet for equipment, assistance with technology, advocacy groups, research to find a cure and a monthly support group. After some hesitation, I went to a support group meeting and the sharing of information and resources from the group was incredibly helpful. The ALS social worker and nurse as well as the other PALS and CALS made me and my family feel that we were not alone. I continue to go to meetings and I hope that my family and I are able to help others with what we have experienced.
The ALS Association of Greater New York Chapter has assisted us in navigating this complex journey with kindness and compassion and our family wanted to give back. Since we all love the Jersey Shore, our family talked about participating in the Jersey Shore ALS Walk. We wanted to raise awareness as well as money for research and resources. My son Noah decided to start a team for the walk. As team captain he named our team “Never Give Up,” a motto I live by. He set a goal for our team to raise $2,500, not even imagining that he could raise that much. After contacting friends and family whom he thought would donate a few dollars, and maybe come to the walk, we were overwhelmed by the outpouring of support. There were over 50 of our friends and family members that participated in the walk and our team ended up raising over $11,000.
Our family will “Never Give Up” our fight. We hope you will join us in defeating ALS by donating to the Jersey Shore Walk to Defeat ALS this holiday season.
Best Wishes for a Happy, Healthy Holiday!
Never Give Up