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Support Groups

The ALS Association Greater New York Chapter offers monthly support groups in New York and New Jersey. Each month support groups provide an opportunity for patients, family members, caregivers and friends to come together to share stories, hear the experiences of other PALS and to get information. Scheduled are a variety of speakers to increase your knowledge about community resources and effective strategies for living with ALS.

The following support groups are open to patients, caregivers, family members and friends. For more information on these groups call or email Christine Dunn at (212) 720-3044 or dunn@als-ny.org contact the facilitator of the group you are interested in listed below.


September Support Groups


MANHATTAN, NY
Tuesday, September 19th, 2017 from 6:00 to 8:00 pm
Mt. Sinai Beth Israel Hospital
Phillips Ambulatory Care Center
10 Union Square East (b/w 14th & 15th Sts.)
New York, NY 10003
Neurology Dept., 5th Floor Conf. Room
Contact: Jody Wiesel, PhD, (917) 699-9751
Topic: Proper Breathing Techniques in ALS
Speaker: Betsy Thomason, BA, RRT, Author
Next month’s support group meets: Oct. 17th, 2017

QUEENS, NY
Wednesday, Sept. 20th, 2017 from 6:00 to 8:00p m
The SilverCrest Center for Nursing and Rehabilitation
144-45 87th Avenue
Briarwood, NY 11435
Contact: Michelle McKenzie, LMSW (718) 644-1750
Tracy Sandy-Ali, MPH, LPN, CCRC, (631) 697-6314
Topic: Radicava Update
Speaker: Robin Krantz, MSN, RN, Clinical Educator at MT
Pharma America
Next month’s support group meets: Oct. 18th, 2017

JAMES J. PETERS BRONX VA MEDICAL CENTER
Wednesday, Sept. 13th - 1:00pm to 3:00pm
130 West Kingsbridge Road, 1E - Dayroom SCI Unit
Bronx, NY 10468
Contacts: Michelle McKenzie, LMSW (718) 644-1750
Carmen Rivas, RN (718) 584-9000 ext. 5405
April Jones, RN (718) 584-9000 ext. 5213
Topic: Open Discussion
Next month’s support group meets: Oct. 11th, 2017

NASSAU COUNTY, NY
There will be no Sept. Support Group due to
Labor Day Holiday

Northwell Health - Plainview Hospital (Downstairs)
888 Old Country Road - Plainview, NY 11803
Contact: Cindy Keyser-Posner, LMSW (631) 416-2767
Carol Bishop, RN, (631) 219-0947
Next month’s support group meets: Oct. 1st, 2017

SUFFOLK COUNTY, NY
Tuesday, Sept. 5th - from 6:00 to 8:00 pm
Stony Brook University Hospital, Dept. of Neurology
179 N. Belle Mead Road, East Setauket, NY 11733
Contacts: Cindy Keyser-Posner, LMSW, (631)416-2767
Theresa Imperato, RN, (516) 946-5467
Topic: Open Discussion
Next month’s support group meets: Oct. 3rd, 2017

WESTCHESTER, NY/WHITE PLAINS
Tuesday, Sept. 12th, 2017 from 6:00 to 8:00 pm
Burke Rehabilitation Center
785 Mamaroneck Avenue, Building 7
White Plains, NY 10601
Contacts: Helen Mayer, RN, (845) 520-0952
Nancy Brenner, LCSW, (914) 406-3513
Topic: Art Therapy For PALS & Caregivers
Speaker: Erika Mayer, LCAT, ATR-BC
Next month’s support group meets: Oct. 10th, 2017

LOWER HUDSON VALLEY, NY
Tuesday Sept. 5th - 6:00 to 8:00 pm
Ambulatory Surgery Center Bldg. C, 3rd Fl.
200 Westage Business Center - Fishkill, NY 12524
Contacts: Helen Mayer, RN, (845) 520-0952
Nancy Brenner, LCSW, (914) 406-3513
Topics: Art Therapy For PALS & Caregivers
Speakers: Erika Mayer, LCAT, ATR-BC
Next month’s support group meets: Oct. 3rd, 2017

CENTRAL NJ
Saturday, Sept. 16th, 2017 from 1:30 to 3:30 pm
Robert Wood Johnson Fitness & Wellness Center
100 Kirkpatrick Street - Community Education Room
New Brunswick, NJ 08901, Level 2
Contacts: Debbie Schlossberg, LMSW, (732) 710-8832
Mary Ann Mertz, RN, (908) 552-5573
Topic: Radicava Update
Speaker: Robin Krantz, MSN, RN, Clinical Educator at MT
Pharma America
Next month’s support group meets: Oct. 21st, 2017

NORTHERN NJ/SADDLE BROOK
Thursday, Sept. 7th, 2017 from 7:00 to 9:00 pm
Kessler Institute for Rehabilitation
300 Market Street, Saddle Brook, NJ 07663
Contacts: Debbie Schlossberg, LMSW, (732) 710-8832
Mary Ann Mertz, RN, (908) 552-5573
Topic: Radicava Update
Speaker: Robin Krantz, MSN, RN, Clinical Educator at
MT Pharma America
Next month’s support group meets: Oct. 5th, 2017

TELEPHONE SUPPORT GROUPS
Patient group: Every Wednesday from 2:30 to 3:30 pm
Caregivers group: Every Wednesday from 4:00 to 5:00 pm
Contact: Susan Zimmerman, LCSW at 212-720-3050
Topics include: Open discussions and Meditation and Guided Imagery for Stress Reduction

Recursos en español disponibles. Por favor llame al (212) 619-1400. Gracias.


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