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Support Groups

The ALS Association Greater New York Chapter offers monthly support groups in New York and New Jersey. Each month support groups provide an opportunity for patients, family members, caregivers and friends to come together to share stories, hear the experiences of other PALS and to get information. Scheduled are a variety of speakers to increase your knowledge about community resources and effective strategies for living with ALS.

The following support groups are open to patients, caregivers, family members and friends. For more information on these groups call or email Christine Dunn at (212) 720-3044 or dunn@als-ny.org contact the facilitator of the group you are interested in listed below.


July Support Groups


MANHATTAN, NY
Tuesday, July 18th, 2017 from 6:00 to 8:00 pm
Mt. Sinai Beth Israel Hospital
Phillips Ambulatory Care Center
10 Union Square East (b/w 14th & 15th Sts.)
New York, NY 10003
Neurology Dept., 5th Floor Conf. Room
Contact: Jody Wiesel, PhD, (917) 699-9751
Topic: Medicare & Medicaid Eligibility
Speaker: Elisha Wellerstein, Esq., Elder Care Attorney
Next month’s support group meets: August 15th, 2017

QUEENS, NY
Wednesday, July 19th, 2017 - 6:00 to 8:00 pm
SilverCrest Center for Nursing and Rehabilitation
144-45 87th Avenue
Briarwood, NY 11435
Contact: Michelle McKenzie, LMSW (718) 644-1750
Topic: Open Discussion
Next month's support group meets: August 16th, 2017

JAMES J. PETERS BRONX VA MEDICAL CENTER
* Open to Veterans and Non Veterans *

Wednesday, July 12th, 2017 from 1:00 to 3:00 pm
130 West Kingsbridge Road
Bronx, NY 10468
1E - Dayroom SCI Unit
Contacts: Michelle McKenzie, LMSW (718) 644-1750
Carmen Rivas, RN (718) 584-9000 ext. 5405
April Jones, RN (718) 584-9000 ext. 5213
Topic: Managing ALS with Adaptive Devices
Speaker: Desiree Alvarado, OTR/L Occupational Therapist
Next month's support group meets: August group is cancelled

NASSAU COUNTY, NY
July group is cancelled due to the July 4th holiday
Northwell Health - Plainview Hospital
888 Old Country Road
Plainview, NY 11803 (Downstairs)
Contact: Cindy Keyser-Posner, LMSW, (631) 416-2767
Carol Bishop, RN, (631) 219-0947
Next month’s support group meets: August 6th, 2017

SUFFOLK COUNTY, NY
July group is cancelled due to the July 4th holiday
Stony Brook University, Dept. of Neurology
179 N. Belle Mead Road
East Setauket, NY 11733
Contacts: Cindy Keyser-Posner, LMSW, (631) 416-2767
Theresa Imperato, RN, (516) 946-5467
Next month’s support group meets: August 1st, 2017

WESTCHESTER, NY/WHITE PLAINS
Tuesday, July 11th, 2017- 6:00 to 8:00 pm
Burke Rehabilitation Center
785 Mamaroneck Avenue, Building 7
White Plains, NY 10601
Contacts: Helen Mayer, RN, (845) 520-0952
Nancy Brenner, LCSW, (914) 406-3513
Topic: Open Discussion
Next month’s support group meets: August 8th, 2017

LOWER HUDSON VALLEY, NY
July group is cancelled due to the July 4th holiday
Ambulatory Surgery Center Bldg. C, 3rd Fl.
Suite 130 (across from the elevator)
200 Westage Business Center
Fishkill, NY 12524
Contacts: Helen Mayer, RN, (845) 520-0952
Nancy Brenner, LCSW, (914) 406-3513
Next month’s support group meets: August 1st, 2017

CENTRAL NJ
Saturday, July 15th, 2017- 1:30 to 3:30 pm
Robert Wood Johnson Fitness & Wellness Center
100 Kirkpatrick Street
New Brunswick, NJ 08901, Level 2
Community Education Room
Contacts: Debbie Schlossberg, LMSW, (732) 710-8832
Mary Ann Mertz, RN, (908) 552-5573
Topic: Open Discussion
Next month’s support group meets: August 19th, 2017

NORTHERN NJ
Thursday, July 6th, 2017-7:00 to 9:00 pm
Kessler Institute for Rehabilitation
300 Market Street, Saddle Brook, NJ 07663
Contacts: Debbie Schlossberg, LMSW (732) 710-8832
Mary Ann Mertz, RN, (908) 552-5573
Topic: Open Discussion
Next month’s support group meets: August 3rd, 2017

SPECIALIZED SUPPORT GROUP FOR NEWLY DIAGNOSED
NORTHERN NJ, THURSDAY, JULY 27th, 7:00 - 9:00pm

For more information or to sign up for the support group, please contact:
Mary Ann Mertz, RN, (908) 552-5573
or Debbie Schlossberg, LMSW (732) 710-8832

TELEPHONE SUPPORT GROUPS
Patient group: Every Wednesday from 2:30 to 3:30 pm
Caregivers group: Every Wednesday from 4 to 5 pm
Contact: Susan Zimmerman, LCSW at 212-720-3050
Topics include: Open discussions and Meditation and Guided Imagery for Stress Reduction

SUMMER CAMPS FOR KIDS
If you are interested in summer camps for kids who are coping with a loved one with ALS or
who are already bereaved, please call Sue Zimmerman, LCSW, Patient Services Coordinator
at (212) 720-3050 for information.

Recursos en espaƱol disponibles. Por favor llame al (212) 619-1400. Gracias.


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