Become an Advocate

As an ALS United Greater New York advocate, you can help change the laws and policies that affect thousands of people with ALS and their families.

What is Advocacy and why is it important?

Advocate: a person who publicly supports or recommends a particular cause or policy.

ALS United Greater New York is a leader in championing policies aimed at improving the quality of life for individuals living with ALS, as well as their families and caregivers. Our advocacy efforts are firmly grounded in the voices and needs of those affected by ALS, as we strive to support and improve their daily lives. Our strength emanates from the active engagement of ALS patients and their families in the advocacy process, which has yielded significant achievements such as increased federal funding for ALS research, the successful passage of the Medicare waiver for ALS patients, the establishment of presumptive disability recognition by the Social Security Administration, and the allocation of state funding in both New York and New Jersey.

How You Can Help

Our advocates are passionate about encouraging government officials at all levels — state, local, and federal — to improve awareness and resources for people affected by ALS.

Advocates affect real change in the way that our government responds to the needs of the ALS community.

Sharing your connection to ALS in person, over the phone, in an email or even a letter can help educate and mobilize our elected officials to take action! Advocates with ALS United Greater New York help change the laws and policies that affect all people with ALS and their families every single year.

Become an ALS advocate today!

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