Public Policy Priorities
We prioritize legislation that reflects the lived experiences and perspectives of individuals with ALS, their dedicated caregivers, healthcare, and scientific professionals. We amplify the voices of those intimately acquainted with the disease, ensuring that all elected officials, regardless of political affiliation, hear their perspectives. Our overarching goal is to drive legislative and policy changes that improve the quality of life for ALS patients and provide essential support to their families and caregivers.
ALS United Greater New York's core initiatives aim to create significant positive change for individuals affected by ALS and their caregivers by focusing our efforts on the following:
Access to Care
Improving Quality of Life
Federal Legislation & Funding
States - New Jersey and New York
Start Advocating Today
We need your voice to help bring change and hope for people living with ALS.