ALS Legislative Priorities

We prioritize legislation that reflects the lived experiences and perspectives of individuals with ALS, their dedicated caregivers, healthcare, and scientific professionals. We amplify the voices of those intimately acquainted with the disease, ensuring that all elected officials, regardless of political affiliation, hear their perspectives. Our overarching goal is to drive legislative and policy changes that improve the quality of life for ALS patients and provide essential support to their families and caregivers.

ALS United Greater New York's core initiatives aim to create significant positive change for individuals affected by ALS and their caregivers by focusing our efforts on the following: 

Advancing Research

Access to Care

Improving Quality of Life

ALS organizations come together to advocate for FY25 funding priorities to Congress

Read the joint letter to Congress advocating for FY25 funding priorities here. 

Federal Legislation & Funding

States - New Jersey and New York

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We need your voice to help bring change and hope for people living with ALS.