News & Publications
Support Groups provide an opportunity for those living with ALS, family members, caregivers and friends to come together to share stories, hear the experiences of others living with the disease and to get information. While support groups are regional, anyone can attend any group that works for their schedule. Contacts: Mary Ann Mertz, RN, (908) 552-5573,mmertz@als-ny.org…
Support Groups provide an opportunity for those living with ALS, family members, caregivers, and friends to come together to share stories, and hear the experiences of others living with the disease. While support groups are regional, anyone can attend any group that works for their schedule. Contacts: Charisse Viscomi-Santos, LPN, (201) 926-5374, csantos@als-ny.org
ALS United Greater New York offers support groups on the first & third Tuesday of the month at 2:30 to those who have lost a loved one to ALS. The support groups serve as opportunities for surviving caregivers and other family members of people with ALS to connect with others within safe spaces for feeling,…
Support Groups provide an opportunity for those living with ALS, family members, caregivers, and friends to come together to share stories, and hear the experiences of others living with the disease. While support groups are regional, anyone can attend any group that works for their schedule. Facilitator: Care Services Team Member. Contact Chris Dunn at…
Support Groups provide an opportunity for those living with ALS, family members, caregivers, and friends to come together to share stories, and hear the experiences of others living with the disease. While support groups are regional, anyone can attend any group that works for their schedule. Contacts: Contacts: Michelle McKenzie, LMSW, (718) 644-1750, mmckenzie@als-ny.org Ernest…
Support Groups provide an opportunity for those living with ALS, family members, caregivers and friends to come together to share stories, hear the experiences of others living with the disease. While support groups are regional, anyone can attend any group that works for their schedule. Contacts: Contact: Jody Wiesel, PhD., (212) 720-3044, jod318@gmail.com
ALS United Greater New York offers support groups on the first & third Tuesday of the month at 2:30 to those who have lost a loved one to ALS. The support groups serve as opportunities for surviving caregivers and other family members of people with ALS to connect with others within safe spaces for feeling,…
Support Groups provide an opportunity for those living with ALS, family members, caregivers and friends to come together to share stories, hear the experiences of others living with the disease and to get information. While support groups are regional, anyone can attend any group that works for their schedule. Contacts: Theresa Imperato, RN, (516) 946-5467, imperato@als-ny.org…
Support Groups provide an opportunity for those living with ALS, family members, caregivers, and friends to come together to share stories, and hear the experiences of others living with the disease. While support groups are regional, anyone can attend any group that works for their schedule. Contacts: Eileen Margenat, RN, (914) 705-9247, emargenat@als-ny.org Nancy Brenner,…
Support Groups provide an opportunity for those living with ALS, family members, caregivers, and friends to come together to share stories, and hear the experiences of others living with the disease. While support groups are regional, anyone can attend any group that works for their schedule. Contacts: Charisse Viscomi-Santos, LPN, (201) 926-5374, csantos@als-ny.org
Publications
- Fall 2025 Newsletter
- Summer 2025 Newsletter
- Advocacy Newsletter July 2025
- Protect Medicaid Letter
- Spring Newsletter 2025
- FY 2026 Federal Funding Requests
- Cuts to NIH Letter
- 2024 Year in Review
- Fall 2024 Newsletter
- Summer 2024 Newsletter
- Medical Aid in Dying Memo of Support
- Spring 2024 Newsletter
- 2023 Year in Review
- Fall 2023 Newsletter
- Summer 2023 Newsletter
- Spring 2023 Newsletter
- 2022 Year In Review
- Fall 2022 Newsletter
- 2021 Year In Review
- Fall 2021 Newsletter
- Summer 2021 Newsletter
- Winter 2021 Newsletter
- Fall 2020 Newsletter
- Summer 2020 Newsletter