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Hudson Valley Support Group

Virtual Contact Organizer for Information

Support Groups provide an opportunity for those living with ALS, family members, caregivers, and friends to come together to share stories, and hear the experiences of others living with the disease. While support groups are regional, anyone can attend any group that works for their schedule. Contacts: Eileen Margenat, RN, (914) 705-9247, emargenat@als-ny.org Nancy Brenner,…

Talk. Learn Connect. – Sexuality, Intimacy & ALS

Virtual Contact Organizer for Information

TLC: Talk. Learn. Connect. series offers a variety of speakers to increase your knowledge about community resources and effective strategies for living with the disease via Zoom. Contact Chris Dunn for the Zoom link at dunn@als-ny.org. Presenters: Gioia Ciani, OTD, OTR/L, Occupational Therapy Program Director, Hofstra University & Shara Holzberg, MS, CCC-SLP, Speech Therapist Understanding…

Talk. Learn. Connect. – Stress Management & the Holidays

Virtual Contact Organizer for Information

TLC: Talk. Learn. Connect. series offers a variety of speakers to increase your knowledge about community resources and effective strategies for living with the disease via Zoom. Contact Chris Dunn for the Zoom link at dunn@als-ny.org. Presenter: Susan Simms, LCSW-R, Owner/Director of Positive Therapy 4U and co-founder of Indigo Light Center for Joyful Living A…

New Jersey Support Group

Virtual Contact Organizer for Information

Support Groups provide an opportunity for those living with ALS, family members, caregivers and friends to come together to share stories, hear the experiences of others living with the disease and to get information. While support groups are regional, anyone can attend any group that works for their schedule. Contacts: Mary Ann Mertz, RN, (908) 552-5573,mmertz@als-ny.org…

Patients & Caregivers Support Group

Virtual Contact Organizer for Information

Support Groups provide an opportunity for those living with ALS, family members, caregivers, and friends to come together to share stories, and hear the experiences of others living with the disease. While support groups are regional, anyone can attend any group that works for their schedule. Contacts: Charisse Viscomi-Santos, LPN, (201) 926-5374, csantos@als-ny.org

Caregiver Bereavement Support Group

Support Groups provide an opportunity for patients, family members, caregivers, and friends to come together to share stories, and hear the experiences of others living with ALS. While support groups are regional, anyone can attend any group that works for their schedule. The bereavement group meets on the first and third Tuesday of the month.…

New York City Support Group

Virtual Contact Organizer for Information

Support Groups provide an opportunity for those living with ALS, family members, caregivers and friends to come together to share stories, hear the experiences of others living with the disease. While support groups are regional, anyone can attend any group that works for their schedule. Contacts: Contact: Jody Wiesel, PhD., (212) 720-3044, jod318@gmail.com

Caregivers Only Support Group

Virtual Contact Organizer for Information

Support Groups provide an opportunity for those living with ALS, family members, caregivers, and friends to come together to share stories, and hear the experiences of others living with the disease. While support groups are regional, anyone can attend any group that works for their schedule. Contact: Donna Freund, LCSW,(646) 745-6608, dfreund@als-ny.org

James J. Peters Bronx VA Medical Center

Support Groups provide an opportunity for those living with ALS, family members, caregivers, and friends to come together to share stories, and hear the experiences of others living with the disease. While support groups are regional, anyone can attend any group that works for their schedule. Contacts: Contacts: Michelle McKenzie, LMSW, (718) 644-1750, mmckenzie@als-ny.org Ernest…

Talk. Learn. Connect. – Eating Strategies for the Holiday

Virtual Contact Organizer for Information

TLC: Talk. Learn. Connect. series offers a variety of speakers to increase your knowledge about community resources and effective strategies for living with the disease via Zoom. Contact Chris Dunn for the Zoom link at dunn@als-ny.org. Presenter: Lorraine Danowski, MS, RD, PhD, Stonybrook University Medical Center Eating Safely through the Holidays