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young person with ALS and her friend

From Softball Rivals to Sisters: ALS Can’t Stop Friendship by Vaughnée T. Simmons

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As an inner-city youth from El Barrio, also known as East Harlem, I was blessed to have found love in the beautiful sport of softball. The sport kept me active,…

collage of people with ALS

Understanding ALS: An In-Depth Look

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At ALS United Greater New York, we believe in empowering individuals and families impacted by Amyotrophic Lateral Sclerosis (ALS)—often referred to as Lou Gehrig’s disease—with comprehensive care, pioneering research, and…

ALS social worker

Care Services Team Spotlight: Michelle McKenzie

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ALS United Greater New York’s Care Service Team has some of the most caring and experienced local staff working with those living with ALS in the greater New York region.…

Governor Hochul Proposes $25 Million for ALS Research in State Budget

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New York Governor Kathy Hochul has taken a bold step in the fight against Amyotrophic Lateral Sclerosis (ALS) by proposing a groundbreaking $25 million allocation for ALS research in her…

Lou Gehrig Legacy Gala Raises Over $500,000

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On Monday, November 6th, the ALS community came together to commemorate the remarkable progress in ALS research and the ever-evolving landscape of care for those contending with this devastating disease…

Bridging the Gap: Greater New York Transportation Program

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Accessing essential healthcare services is fundamental, but for many ALS patients and their families, travel can be an insurmountable challenge. The hustle and bustle of daily life can be daunting,…

Members of Her ALS Story with New York Yankees

Special Tribute to Her ALS Story

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We are absolutely thrilled to shine a spotlight on Her ALS Story at the upcoming Lou Gehrig Legacy Gala, taking place on November 6th at Pier Sixty in New York…

Love, Poetry and Painting

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In 2022, Lou was diagnosed with ALS. However, a little over twenty years ago a love story of art and poetry began. Back in 2002, Mary and Lou crossed paths…

ALS in home technology assistance

Learn About Care Services Update

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HOME VISITS Our local Care Services team is excited to offer in-person home visits once again throughout our region. We no longer require waivers or precautions, but safety remains our…

Walk to Defeat ALS Long Island Team posing for picture in park

For the Love of Jemma – Family Raises Over $2 Million For ALS Research

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Long Island Walk to Defeat ALS Team on their 18-Year Quest to Conquer the Disease, Raises Over $2 Million for Research For the past 18 years, countless family members and…

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