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A Song for ALS: My Journey to Organizing a Benefit Concert

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By Wayne Warnecke It was August 2020 when I first began to notice subtle changes in my body—slight difficulty with breath control during physical activity, trouble standing upright, intermittent muscle…

Empowered Journeys: New Program Offers Life-Affirming Travel Opportunities  

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With a generous grant from The Sunshine Foundation, we have been delighted and honored to offer a new program providing quality-of-life transportation support to people living with ALS in our…

Mrs New Jersey with father who has ALS

Strength to Bloom: Honoring My Father, Empowering Others 

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My name is Lauren Garcia-Marcigliano, and on March 2, 2025, I was crowned Mrs. New Jersey International—a moment that represents far more than a title. It is a platform, a…

An Unforgettable Night of Music, Community, and Hope: A Night for Wayne Warnecke Draws 300 in Support of ALS United Greater New York

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Overflowing with talent, heart, and community spirit, Musicians United for ALS: A Night for Wayne Warnecke brought together 300 guests for an unforgettable evening benefiting ALS United Greater New York.…

Advocating for Change: ALS United Greater New York Leads the Way 

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ALS United Greater New York remains deeply committed to driving systemic change through strong advocacy at the federal, state, and local levels. In just the first five months of this…

The Threat to ALS Research

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Urgent Threat to ALS Research Funding A Continuing Resolution (CR) passed by the House now heads to the Senate, posing a significant threat to ALS research. This measure slashes funding…

NIH Must Reverse and Retract Cap of Indirect Cost Rates

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ALS United Greater New York stands with the ALS community nationwide in opposing devastating cuts to research grants at the National Institutes of Health (NIH). We strongly urge the National…

A Needle, A Thread, and A Tradition: A Story of Art and Resilience

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Maritza Namuche was diagnosed with ALS in 2024, and her diagnosis has not stopped her from creating beauty. From a young age, Maritza was fortunate to learn the art of…

15 ALS Nonprofits Collaborate to Form ALS United: A New Era of Innovation and Impact

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Feb. 7, 2025 /PRNewswire/ — Following a comprehensive planning process, 15 independent nonprofit organizations from around the country have formalized ALS United, an innovative partnership dedicated to serving the ALS…

In Gratitude for Caregivers this Thanksgiving. A Reflection on National Caregiver’s Month

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In the spirit of Thanksgiving, Sandy and I will spend the day gathered at a large table surrounded by friends and family at Charlie Brown’s, the very restaurant where we…

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