News & Publications

When my dad was diagnosed with ALS at 73, he was the most active human I knew. He had the energy to live life to its fullest—on top of being…

On November 11 at Pier Sixty, ALS United Greater New York hosted its annual Lou Gehrig Legacy Gala, bringing together supporters, advocates, and leaders in the ALS community for an…

In early spring, ALS United Greater New York partnered with Assemblyman Steve Stern and Senator Jessica Scarcella-Spanton to introduce the ALS Registry Legislation (A7845/S6413), a groundbreaking bill designating ALS as…

This is a story of love and caregiving – spoiler alert, not all stories of love and caregiving necessarily have completely happy endings. I’m Elliot, and in April 2022, my…

ALS United Greater New York mourns the recent passing of Dr. Leonard Tow, whose generosity and vision helped to transform the landscape of ALS research and care. It is with…

Lois Altman was one of the most outgoing, personable, and honest individuals. Always glamorous, she was known for her chic style, love of dancing and laughter, and her warm, effervescent…

Dean Mauriello is shining “a light on the resilience, diversity, and daily challenges of people living with ALS—one heartfelt, on‑camera story at a time—while also raising funds for ALS United’s…

By Wayne Warnecke It was August 2020 when I first began to notice subtle changes in my body—slight difficulty with breath control during physical activity, trouble standing upright, intermittent muscle…

With a generous grant from The Sunshine Foundation, we have been delighted and honored to offer a new program providing quality-of-life transportation support to people living with ALS in our…

My name is Lauren Garcia-Marcigliano, and on March 2, 2025, I was crowned Mrs. New Jersey International—a moment that represents far more than a title. It is a platform, a…