News & Publications

In Gratitude for Caregivers this Thanksgiving. A Reflection on National Caregiver’s Month

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In the spirit of Thanksgiving, Sandy and I will spend the day gathered at a large table surrounded by friends and family at Charlie Brown’s, the very restaurant where we…

A Recipe for Caregiving: Love, Loss, and Lessons from My Mom’s ALS Battle for Family Caregivers Month

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My mom’s slow-progressing symptoms began to worsen as the world shut down in 2020. The isolation blurred my perception of her reality, and it took me time to grasp the…

Caregiving and Marriage: How ALS Has Transformed Our Lives – “Rom & Tobin”

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In 1983, I spent two years teaching English in Japan. Around 1984, my parents came to visit, and it was during that trip that I first heard about ALS. My…

Lou Gehrig Legacy Gala 2024

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The ALS United Greater New York community gathered on November 12, 2024, for the annual Lou Gehrig Legacy Gala, a night dedicated to reflecting on the strides made in ALS…

How New Medicare Changes Impact ALS Patients

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ALS United Greater New York remains steadfast in its mission to support families affected by ALS, extending assistance across all aspects of care. One area of focus is helping families…

Clinic Spotlight – James J. Peters Veterans Affairs Medical Center

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In 2014, a forward-thinking team launched a pilot project to provide specialized care for veterans with ALS at the James J. Peters Veterans Affairs Medical Center (Bronx VA). Dr. Marinella…

Stony Brook Researchers Develop AI and Robotics to Aid ALS Patients and Caregivers

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Researchers at Stony Brook University are working on an innovative project to aid ALS patients and their caregivers using artificial intelligence (AI) and robotics. The project, supported by a $1.5…

ALS United Greater New York Rings the NASDAQ Opening Bell to Celebrate the 10th Anniversary of the Ice Bucket Challenge

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On a bright morning in New York City, ALS United Greater New York began the day by ringing the opening bell at Nasdaq, marking the 10th Anniversary of the Ice…

If There is a Will…

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Boating has been part of our lives for most of the 50+ years of our marriage. It has been our escape from the pressures of everyday living – soothing work-induced…

New ALS United Greater NY Board Members

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The ALS United Board of Directors comprises 18 dedicated and compassionate professionals with diverse expertise, many of whom have a personal connection to ALS. We are honored to welcome a…

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