News & Publications

By Wayne Warnecke It was August 2020 when I first began to notice subtle changes in my body—slight difficulty with breath control during physical activity, trouble standing upright, intermittent muscle…

With a generous grant from The Sunshine Foundation, we have been delighted and honored to offer a new program providing quality-of-life transportation support to people living with ALS in our…

My name is Lauren Garcia-Marcigliano, and on March 2, 2025, I was crowned Mrs. New Jersey International—a moment that represents far more than a title. It is a platform, a…

Overflowing with talent, heart, and community spirit, Musicians United for ALS: A Night for Wayne Warnecke brought together 300 guests for an unforgettable evening benefiting ALS United Greater New York.…

ALS United Greater New York remains deeply committed to driving systemic change through strong advocacy at the federal, state, and local levels. In just the first five months of this…

Urgent Threat to ALS Research Funding A Continuing Resolution (CR) passed by the House now heads to the Senate, posing a significant threat to ALS research. This measure slashes funding…

ALS United Greater New York stands with the ALS community nationwide in opposing devastating cuts to research grants at the National Institutes of Health (NIH). We strongly urge the National…

Maritza Namuche was diagnosed with ALS in 2024, and her diagnosis has not stopped her from creating beauty. From a young age, Maritza was fortunate to learn the art of…

Feb. 7, 2025 /PRNewswire/ — Following a comprehensive planning process, 15 independent nonprofit organizations from around the country have formalized ALS United, an innovative partnership dedicated to serving the ALS…

In the spirit of Thanksgiving, Sandy and I will spend the day gathered at a large table surrounded by friends and family at Charlie Brown’s, the very restaurant where we…