News & Publications

Love, Poetry and Painting

Comments Off on Love, Poetry and Painting

In 2022, Lou was diagnosed with ALS. However, a little over twenty years ago a love story of art and poetry began. Back in 2002, Mary and Lou crossed paths…

ALS in home technology assistance

Learn About Care Services Update

Comments Off on Learn About Care Services Update

HOME VISITS Our local Care Services team is excited to offer in-person home visits once again throughout our region. We no longer require waivers or precautions, but safety remains our…

Walk to Defeat ALS Long Island Team posing for picture in park

For the Love of Jemma – Family Raises Over $2 Million For ALS Research

Comments Off on For the Love of Jemma – Family Raises Over $2 Million For ALS Research

Long Island Walk to Defeat ALS Team on their 18-Year Quest to Conquer the Disease, Raises Over $2 Million for Research For the past 18 years, countless family members and…

New Jersey State Budget Allocates $1.5 Million in State Budget for Those Living with ALS.

Comments Off on New Jersey State Budget Allocates $1.5 Million in State Budget for Those Living with ALS.

The Greater New York Chapter and The Philadelphia Chapter of The ALS Association extended their heartfelt gratitude to the New Jersey State Legislature and Governor Murphy for their commitment to…

Legislature Should Pass Genetic Testing Protections for Insured

Comments Off on Legislature Should Pass Genetic Testing Protections for Insured

Currently, insurance companies in New York can charge higher premiums or deny coverage based on genetic test results. It’s a shocking reality affecting individuals and families living with ALS, also…

ALS Month – Spotlight on Our Clinics

Comments Off on ALS Month – Spotlight on Our Clinics

May is ALS Awareness Month and we’re excited to shed some light on the amazing work our clinic and care service teams do to bring renewed hope to families affected…

FDA Committee Recommends Accelerated Approval of Tofersen

Comments Off on FDA Committee Recommends Accelerated Approval of Tofersen

The Food and Drug Administration (FDA) held a virtual meeting of the Peripheral and Central Nervous System Drugs Advisory Committee on March 22, 2023, to review data supporting tofersen’s New…

A Kick In the Butt

Comments Off on A Kick In the Butt

When we both retired from long careers, my wife and I decided we had enough of New Jersey winters, so we purchased a second home in Florida. We have been…

The Greater New York Chapter Receives a $30,000 Quality of Life Grant from The Christopher & Dana Reeve Foundation

Comments Off on The Greater New York Chapter Receives a $30,000 Quality of Life Grant from The Christopher & Dana Reeve Foundation

The ALS Association Greater New York Chapter is proud to announce that it has been awarded $30,000 as part of the Christopher & Dana Reeve Foundation National Paralysis Resource Center…

November is National Family Caregivers Month

Comments Off on November is National Family Caregivers Month

It is a very tricky business being a caregiver to an ALS patient; you must manage your time wisely, keep an eye and mind on signs/symptoms, be forward-thinking, yet still…

Publications

Archives