Important Update

As of September 1, 2023, 15 chapters, currently members of the ALS Association, will begin the process of legally separating from the organization. This includes Greater New York. First and foremost, we want to assure you we are continuing operations without interruption. Our firm commitment to ALS patients and our fight against ALS continues.

Over the past two years, the national office of the ALS Association has worked to merge all 34 chapter entities across the country into a single organization. After thoughtful deliberation and an assessment of the impact on the communities we serve, Greater New York chose to maintain our corporate autonomy ensuring the highest standard and continuity of care for our ALS community, while facilitating the search for effective treatments and cures. Greater New York has been a trusted resource in our territory for decades and we are one of the largest ALS patient service organizations in the country.

The 15 chapters separating from the ALS Association represent nearly half of the patient community and more than half of the partnerships with our Certified Treatment Centers of Excellence and multidisciplinary specialty clinics for ALS in the U.S. Greater New York is collaborating closely with these independent chapters and will continue to maintain and build out a robust network of information and resource sharing across the ALS community. Not only do we have a decades-long track record of support and progress, but we also have a reputation for being a responsive, solutions-oriented thought leader and collaborative partner.

As we chart our next steps of growth and development in pursuit of our ultimate vision of ending ALS, we will continue to provide timely updates, and we will seek your feedback along the way. We also want to assure you that our essential programs and services, including care management, clinic support, educational summit, equipment loan programs, family and patients grants, support groups, advocacy, events of all kinds, and funding of groundbreaking research initiatives will not be disrupted because of the separation process.

Everything we do is driven by the ALS community and we deeply appreciate your continued commitment, during this transition period and far into the future. We welcome your feedback and invite you to contact us at We will reply as soon as possible.

Embracing change provides Greater New York with tremendous opportunities, and we look forward to the next steps, together.


Allen J. Popowitz, Esq.           Kristen P. Cocoman
Chairman of the Board         President & CEO