Newly Diagnosed

You are not alone.

We know that the time around one's diagnosis can be difficult and can bring up many questions. Where does someone find information, how do they choose medical providers, and where can they get support? We are here to walk alongside you on this path. Our team of experts has deep knowledge of existing resources and always has an ear to listen to and shoulders to lean on.

Register with ALS United Greater New York

Our team of professional Care Service Coordinators provides expert advice and assistance for people living with ALS, free of charge. Our office is open Monday through Friday. Please contact us at (212) 720-3044 or fill out the form below and someone will be in contact you. 

Register Here

Learn More About ALS

Watch our series of educational videos and webinars to learn more about the disease, living with ALS, and treatment options.

Register with the National ALS Registry

The National ALS Registry may be the single largest ALS research project ever created and is designed to identify ALS cases throughout the United States. Most important, the Registry is collecting critical information about the disease that will improve care for people with ALS and help us learn what causes the disease and how it can be treated.

Find a Certified Center or Clinic

We collaborate with some of the best ALS physicians and clinics across the United States to help ensure that people living with ALS have access to specialized care, based on best practices. Regional ALS Clinics and Centers provide compassionate care in a supportive, family-oriented atmosphere.

Join a Support Group

Support Groups provide opportunities for people living with ALS and their loved ones to share their personal experiences and learn more about strategies for preserving independence and maximizing quality of life.

Additional Resources