Privacy Policy

This is the website of ALS United Greater New York, http://www.als-ny.org.

Our postal address is:
ALS United Greater New York
42 Broadway, Suite 1724
New York, NY 10004

You can contact us via email at als@als-ny.org or by phone at (212) 619-1400.

We provide this notice to explain our online information practices. By visiting our site at www.als-ny.org, you are accepting the practices described in this privacy notice.

Privacy Policy Statement
ALS United Greater New York (ALSUGNY) is committed to protecting the privacy of its users and donors. Information gathered by ALS United Greater New York is used to monitor the effectiveness of our site and respond to your questions and requests. ALS United Greater New York will never sell or share donor information.

Aggregate Information
When you visit our website, our server automatically logs (records) the domain name and standard anonymous information about the operating system and web browser you are using, as provided by your web browser. This automatically collected information is used for statistical purposes to help us manage our site and better serve the community, but it does not identify you in any way.

Identifiable Information

  • Donors
    ALS Greater New York respects the privacy of its financial supporters. We do not rent or exchange our donor list with any other organization. ALS United Greater New York will never sell or share donor information. This policy pertains to both online and offline donors.
  • Patient & Family Information
    Patient and family information, including, but not limited to, name, physical address, email address, age, and telephone number, is confidential and will only be shared with ALS United Greater New York entities with written permission from a patient or their designee. Under no circumstances, will ALS United Greater New York provide or sell any of this information to outside entities, except where required by law and then only after providing notice to the patient and/or designee/caretaker. ALS United Greater New York will, upon request of a patient or their designee/caretaker, serve as an intermediary between patients and outside entities where deemed appropriate.

ALS United Greater New York may provide to government agencies and outside entities aggregate data on ALS including incidence, prevalence, and number of patients served by our organization.

Data Security Statement
The security of your personal information is very important to us and we are committed to protecting the information we collect. Als-ny.org uses firewalls and has security measures in place at its physical facilities to protect against the loss, misuse, or alteration of information that we have collected from you on our website. This includes the use of Secure Sockets Layer (SSL) for processing contributions securely. SSL is the proven standard for secure web messaging transactions.

Privacy options and access.

Contact Preferences and Restrictions. We respect your privacy and recognize that you may wish to limit the ways in which we contact you and/or share your Personal Information, including for fundraising purposes. On many of our email communications, you may manage what type of communications you want to receive from ALSUGNY, or you may opt out of receiving certain email communications. However, we will continue to send transaction-related emails regarding our relationship and the services you have requested.

In addition, we offer the following options:

  • Do not contact me by postal mail.
  • Do not contact me by telephone.
  • Do not contact me by SMS (text) message.
  • Do not contact me by email.
  • Do not share my information

To inform us of any desired restrictions, please make changes through the instructions on the ALSUGNY email communication, email us at info@als-ny.org, or mail your request to: ALS United Greater New York, 42 Broadway, Suite 1724, New York, New York, 10004 Attn: Customer Service

Registrations and Subscriptions. If you register for an ALSGNY event or sign up for a newsletter or similar subscription, you will receive communications related to that service, regardless of your prior preferences or restrictions. If you no longer wish to receive event emails or other email subscriptions, email us at: info@als-ny.org, or mail your request to: ALS United Greater New York, 42 Broadway, Suite 1724, New York, New York, 10004 Attn: Customer Service.

Mobile Applications (Apps). You can stop the collection of information by Apps by uninstalling the Apps. You may use the standard uninstall processes available as part of your mobile device or network. To discontinue the collection of geolocation data within Apps, you can modify your privacy settings on your mobile device.

Personal Information Changes. If you have an ALSUGNY account, you may log in to update or change your Personal Information. You can also send your request through one of the contact options on our Contact Us page. After submitting a request, ALSUGNY will utilize identity verification methods in order to change or delete account information and/or data.

ALS United Greater New York reserves the right to change this policy at any time. Our privacy policy will be kept up-to-date and clearly posted on our website.