Research We Fund

Your generous support enables us to fund millions of dollars in research every year, in locations across the globe. We fund projects across the research pipeline, from basic research through clinical trials, and our support has led to several potential treatments currently in clinical trials. 

Research Inititatives

ALS United Greater New York has invested $16 million dollars in ALS Research and has been a key supporter of many research initiatives, including the following:

Genome Center (1)

New York Genome Center - Center For Genomics of Neurodegenerative Diseases (CGND) 
The consortium is a collaboration between numerous global laboratories capable of generating and analyzing thousands of DNS sequences from people with ALS.  The goal is to discover new genetic contributors for ALS The CGND houses all data in a central repository that is freely available to the research community worldwide.

Project Mine

Project MinE
Project MinE is an international, large-scale research initiative devoted to discovering genetic causes of ALS and ultimately finding a cure. Project MinE is based on the fact that genes are thought to contribute, directly or indirectly, to many cases of ALS. Many ALS genes have been identified, but researchers suspect that many more, much rarer variants that affect the risk of ALS are awaiting discovery.

CUMC Biogen

Genomic Translation for ALS care (GTAC)
This collaboration between Biogen and Columbia University Medical Center (CUMC) aims to better identify new targets for treatment development in order to understand how different genes contribute to various clinical forms of ALS. This will translate into clinical trials that are more focused. This study will allow the correlation of ALS clinical symptoms to genetic causes, and help stratify patients for future clinical trials.


Safenowitz Postdoctoral Fellowship Program
The Milton Safenowitz Postdoctoral Fellowship for ALS Research awards are designed to encourage and facilitate young scientists to enter the field of ALS Research. The program was founded by the Safenowitz family, through Greater New York, and awards are given in memory of Mr. Safenowitz. Fellows work with a senior mentor and receive extensive exposure to the ALS research community. More than 90% of the fellows remain in ALS research and contribute significantly to advances made in the field.