The Threat to ALS Research

Urgent Threat to ALS Research Funding

A Continuing Resolution (CR) passed by the House now heads to the Senate, posing a significant threat to ALS research. This measure slashes funding for the Congressionally Directed Medical Research Programs (CDMRP) by 57%—cutting it from $1.5 billion to just $650 million. If passed, this could devastate the ALS Research Program and halt critical advancements.

Why This Situation Is Unprecedented

Typically, Continuing Resolutions maintain existing funding levels until a full budget is approved. However, this CR introduces drastic cuts—a rare and dangerous move for the ALS community.

Why It Matters

• Veterans face double the risk of developing ALS, making this a crucial veterans’ health issue.
• The CDMRP is funded through the Department of Defense, underscoring its military connection.
• Without protective language in the CR, the DoD could divert ALL CDMRP funds away from research.
• Even a short-term funding gap could derail promising ALS research projects.
• Once funding is cut, restoring it in the final budget becomes much harder.
• ALS research cannot afford delays—progress toward treatments and a cure must continue.

Take Action – THURSDAY (March 13) is Critical

The Senate is expected to vote before Friday, making Thursday our last chance to act.

👉 Contact your Senators NOW and urge them to VOTE NO on any CR that fails to protect CDMRP funding.
📍 Find your Senators: www.senate.gov/senators/senators-contact.htm
📢 Spread the word—mobilize friends, family, and advocates to join the fight.

Key Messages for Your Outreach

✅ The House-passed CR slashes CDMRP funding by 57%, threatening critical ALS research.
✅ Veterans are twice as likely to develop ALS, making this a crucial veterans’ health priority.
✅ The Department of Defense funds this research because of ALS’s military connection.
✅ Years of progress are at risk—delayed funding could slow or halt potential treatments.
✅ The Senate must amend the CR to protect CDMRP funding or vote against it.
✅ The ALS community cannot afford delays while waiting for a final budget.

Time Is Running Out – Act Now

The Senate vote is happening within the next 24-48 hours—Thursday is our last real opportunity to influence this decision.