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Upcoming Events
Talk. Learn. Connect. – Ask the Doc
TLC: Talk. Learn. Connect. series offers a variety of speakers and discussion topics to increase your knowledge about community resources and effective strategies for living with the disease. Presenter: Dr. Dora K. Leung, Neurologist, ALS Clinic Mount Sinai/Beth Israel. Dr. Leung will discuss common questions & concerns that those living with ALS and families have.
5th Annual Virtual Education & Resource Summit
Workshops will cover a wide range of topics and will be held over two days. Many of these presentations will represent some of the most forward-thinking and versatile trends in the ALS community.
New Jersey Support Group
Support Groups provide an opportunity for those living with ALS, family members, caregivers and friends to come together to share stories, hear the experiences of others living with the disease and to get information. While support groups are regional, anyone can attend any group that works for their schedule. Contacts: Mary Ann Mertz, RN, (908) 552-5573,mmertz@als-ny.org…
5th Annual Virtual Education & Resource Summit
Workshops will cover a wide range of topics and will be held over two days. Many of these presentations will represent some of the most forward-thinking and versatile trends in the ALS community.
Patients & Caregivers Support Group
Support Groups provide an opportunity for those living with ALS, family members, caregivers, and friends to come together to share stories, and hear the experiences of others living with the disease. While support groups are regional, anyone can attend any group that works for their schedule. Contacts: Charisse Viscomi-Santos, LPN, (201) 926-5374, csantos@als-ny.org
New York City Support Group
Support Groups provide an opportunity for those living with ALS, family members, caregivers and friends to come together to share stories, hear the experiences of others living with the disease. While support groups are regional, anyone can attend any group that works for their schedule. Contacts: Contact: Jody Wiesel, PhD., (212) 720-3044, jod318@gmail.com
Talk. Learn. Connect. – Cognitive & Behavioral Changes in Someone Living with ALS
TLC: Talk. Learn. Connect. series offers a variety of speakers and discussion topics to increase your knowledge about community resources and effective strategies for living with the disease. Presenter: Dr. Monique Pimontel, Psychologist, James J. Peters VA Medical Center. An estimated 15% of individuals with ALS will also develop changes in their thinking abilities and personality.…
Talk. Learn. Connect. – Feeding Tubes
TLC: Talk. Learn. Connect. series offers a variety of speakers and discussion topics to increase your knowledge about community resources and effective strategies for living with the disease. Thursday, May 22, 2025 | 6 PM to 7:30 PM Presenter: Theresa Imperato, RN, ALS United Greater NY. Learn about if, when and how to use a…
Caregivers Only Support Group
Support Groups provide an opportunity for those living with ALS, family members, caregivers, and friends to come together to share stories, and hear the experiences of others living with the disease. While support groups are regional, anyone can attend any group that works for their schedule. Facilitator: Care Services Team Member. Contact Chris Dunn at…
Hudson Valley Support Group
Support Groups provide an opportunity for those living with ALS, family members, caregivers, and friends to come together to share stories, and hear the experiences of others living with the disease. While support groups are regional, anyone can attend any group that works for their schedule. Contacts: Eileen Margenat, RN, (914) 705-9247, emargenat@als-ny.org Nancy Brenner,…