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Upcoming Events
Talk. Learn. Connect. – Legacy Planning
TLC: Talk. Learn. Connect. series offers a variety of speakers to increase your knowledge about community resources and effective strategies for living with the disease via Zoom. Contact Chris Dunn for the Zoom link. Legacy Planning Presenter: Janie Rakow, Farewell Doula Founder A presentation on building a legacy for your loved ones such as writing…
Hudson Valley Support Group
Support Groups provide an opportunity for those living with ALS, family members, caregivers, and friends to come together to share stories, and hear the experiences of others living with the disease. While support groups are regional, anyone can attend any group that works for their schedule. Contacts: Eileen Margenat, RN, (914) 705-9247, emargenat@als-ny.org Nancy Brenner,…
Talk. Learn. Connect. – Top Ten Equipment and Technology Items
TLC: Talk. Learn. Connect. series offers a variety of speakers to increase your knowledge about community resources and effective strategies for living with the disease via Zoom. Contact Chris Dunn for the Zoom link. Presenter: Ben Lieman, ATP, The ALS Association Greater NY Chapter Top 10 Equipment and Technology items that compensate for diminishing physical…
Talk. Learn. Connect. – Parents of Adult Children Diagnosed with ALS
TLC: Talk. Learn. Connect. series offers a variety of speakers to increase your knowledge about community resources and effective strategies for living with the disease via Zoom. Contact Chris Dunn for the Zoom link. Presenter: Michelle McKenzie, LMSW, The ALS Association Greater NY Chapter Open discussion about the challenges associated with having an adult child…
New Jersey Support Group
Support Groups provide an opportunity for those living with ALS, family members, caregivers and friends to come together to share stories, hear the experiences of others living with the disease and to get information. While support groups are regional, anyone can attend any group that works for their schedule. Contacts: Mary Ann Mertz, RN, (908) 552-5573,mmertz@als-ny.org…
Patients & Caregivers Support Group
Support Groups provide an opportunity for those living with ALS, family members, caregivers, and friends to come together to share stories, and hear the experiences of others living with the disease. While support groups are regional, anyone can attend any group that works for their schedule. Contacts: Charisse Viscomi-Santos, LPN, (201) 926-5374, csantos@als-ny.org
New York City Support Group
Support Groups provide an opportunity for those living with ALS, family members, caregivers and friends to come together to share stories, hear the experiences of others living with the disease. While support groups are regional, anyone can attend any group that works for their schedule. Contacts: Contact: Jody Wiesel, PhD., (212) 720-3044, jod318@gmail.com
Caregivers Only Support Group
Support Groups provide an opportunity for those living with ALS, family members, caregivers, and friends to come together to share stories, and hear the experiences of others living with the disease. While support groups are regional, anyone can attend any group that works for their schedule. Contacts: Michelle McKenzie, LMSW, (718) 644-1750, mmckenzie@als-ny.org
Hudson Valley Support Group
Support Groups provide an opportunity for those living with ALS, family members, caregivers, and friends to come together to share stories, and hear the experiences of others living with the disease. While support groups are regional, anyone can attend any group that works for their schedule. Contacts: Eileen Margenat, RN, (914) 705-9247, emargenat@als-ny.org Nancy Brenner,…
Talk. Learn. Connect. – Primary lateral sclerosis (PLS)
TLC: Talk. Learn. Connect. series offers a variety of speakers to increase your knowledge about community resources and effective strategies for living with the disease via Zoom. Contact Chris Dunn for the Zoom link. Presenters: Charisse Santos, LPN; MaryAnn Mertz, RN; Melissa Braxton, LSW, The ALS Association Greater NY Chapter Those living with PLS are…
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