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Upcoming Events
Talk. Learn. Connect. – Spirituality & ALS
TLC: Talk. Learn. Connect. series offers a variety of speakers and discussion topics to increase your knowledge about community resources and effective strategies for living with the disease. Presenter: Mary King, Care Coordinator, ALS United Rocky Mountain What is Spirituality? How can someone with ALS benefit from nurturing a spiritual life? What gives your life…
New Jersey Support Group
Support Groups provide an opportunity for those living with ALS, family members, caregivers and friends to come together to share stories, hear the experiences of others living with the disease and to get information. While support groups are regional, anyone can attend any group that works for their schedule. Contacts: Mary Ann Mertz, RN, (908) 552-5573,mmertz@als-ny.org…
Caregivers Only Support Group
Support Groups provide an opportunity for those living with ALS, family members, caregivers, and friends to come together to share stories, and hear the experiences of others living with the disease. While support groups are regional, anyone can attend any group that works for their schedule. Facilitator: Care Services Team Member. Contact Chris Dunn at…
Talk. Learn. Connect. – Promoting Mobility
TLC: Talk. Learn. Connect. series offers a variety of speakers and discussion topics to increase your knowledge about community resources and effective strategies for living with the disease. Presenter: TBD – The importance of staying mobile
Hudson Valley Support Group
Support Groups provide an opportunity for those living with ALS, family members, caregivers, and friends to come together to share stories, and hear the experiences of others living with the disease. While support groups are regional, anyone can attend any group that works for their schedule. Contacts: Eileen Margenat, RN, (914) 705-9247, emargenat@als-ny.org Nancy Brenner,…
New York City Support Group
Support Groups provide an opportunity for those living with ALS, family members, caregivers and friends to come together to share stories, hear the experiences of others living with the disease. While support groups are regional, anyone can attend any group that works for their schedule. Contacts: Contact: Jody Wiesel, PhD., (212) 720-3044, jod318@gmail.com
Talk. Learn. Connect. – Top 10 Home Access/Assistive Technology Items to Improve Accessibility
TLC: Talk. Learn. Connect. series offers a variety of speakers and discussion topics to increase your knowledge about community resources and effective strategies for living with the disease. Presenter: Ben Lieman, ATP, MSW, Assistive Technology Specialist, ALS United Greater New York. Learn about the top 10 items to improve accessibility
Talk. Learn. Connect. – MAiD (Medical Aid in Dying)
TLC: Talk. Learn. Connect. series offers a variety of speakers and discussion topics to increase your knowledge about community resources and effective strategies for living with the disease. Date: Thursday, July 10, 2025 – 7:00 PM- 8:30 PM (this is a date change for this month only due to the July 4th Holiday) Presenter: Dr.…
Patients & Caregivers Support Group
Support Groups provide an opportunity for those living with ALS, family members, caregivers, and friends to come together to share stories, and hear the experiences of others living with the disease. While support groups are regional, anyone can attend any group that works for their schedule. Contacts: Charisse Viscomi-Santos, LPN, (201) 926-5374, csantos@als-ny.org
Talk.Learn.Connect. – What’s in Your Phone or Computer – Readily Available Assistive Technology
TLC: Talk. Learn. Connect. series offers a variety of speakers and discussion topics to increase your knowledge about community resources and effective strategies for living with the disease. Presenter: Ben Lieman, ATP, MSW, Assistive Technology Specialist, ALS United Greater NY – Learn how your phone and/or computer can assist you.
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