News & Publications

November is National Family Caregivers Month

Comments Off on November is National Family Caregivers Month

It is a very tricky business being a caregiver to an ALS patient; you must manage your time wisely, keep an eye and mind on signs/symptoms, be forward-thinking, yet still…

Roberta Flack Announces She Has ALS

Comments Off on Roberta Flack Announces She Has ALS

NPR – The beloved singer Roberta Flack has announced through a spokesperson that she is battling ALS. The brain disease called amyotrophic lateral sclerosis, or popularly known as Lou Gehrig’s…

James J. Peters Dept. of VA Medical Center is awarded as a “Treatment Center of Excellence”

Comments Off on James J. Peters Dept. of VA Medical Center is awarded as a “Treatment Center of Excellence”

On Veterans Day we celebrated the service of our nation’s heroes and military veterans who have served in the U.S. Armed Forces. In order to improve the lives of Veterans…

Walking with a Caregiver – Pat Galvin Bloom

Comments Off on Walking with a Caregiver – Pat Galvin Bloom

February 13, 2020, is the date our world turned upside down. After months of visits to doctors and specialists, MRIs and other tests, and a neurologist who said it was…

Graphic of Ice Bucket Challenge spending

AMYLYX NEWS

Comments Off on AMYLYX NEWS

On September 29th, the FDA approved AMX0035 (now known as Relyvrio) to treat people living with ALS. Relyvrio, while not a cure, is a victory for the entire ALS community…

TLC: Talk. Learn. Connect.

Comments Off on TLC: Talk. Learn. Connect.

The ALS Association Greater New York Chapter launched a new program called Talk. Learn. Connect. in July. This program offers a variety of speakers to increase one’s knowledge about community resources and…

Giving Hope

Comments Off on Giving Hope

This May, as we recognize ALS Awareness Month, let us honor those who give us hope. Our loved ones, caregivers, friends, neighbors, family, nurses, social workers, or doctors. The people…

New Hobbies & Joys of Expression

Comments Off on New Hobbies & Joys of Expression

Gene and his wife, Meredith who is living with ALS, have been spending the winter in Florida. While there, they engaged a local artist to teach Meredith watercolor painting. It…

Loving Each Other Even More

Comments Off on Loving Each Other Even More

Philip Pellerito and Venera (Vera) met in high school when he first arrived in New York from Italy. He said the first thing he loved about Vera was her beautiful…

Gluck Family Matching Gift Challenge

Comments Off on Gluck Family Matching Gift Challenge

We are extremely honored to announce a matching gift challenge of up to $200,000, made possible by the Gluck Family Foundation. They have generously agreed to match every donation, dollar-for-dollar,…

Publications

Archives