News & Publications

Lou Gehrig Legacy Gala Raises Over $500,000

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On Monday, November 6th, the ALS community came together to commemorate the remarkable progress in ALS research and the ever-evolving landscape of care for those contending with this devastating disease…

Bridging the Gap: Greater New York Transportation Program

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Accessing essential healthcare services is fundamental, but for many ALS patients and their families, travel can be an insurmountable challenge. The hustle and bustle of daily life can be daunting,…

Members of Her ALS Story with New York Yankees

Special Tribute to Her ALS Story

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We are absolutely thrilled to shine a spotlight on Her ALS Story at the upcoming Lou Gehrig Legacy Gala, taking place on November 6th at Pier Sixty in New York…

Love, Poetry and Painting

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In 2022, Lou was diagnosed with ALS. However, a little over twenty years ago a love story of art and poetry began. Back in 2002, Mary and Lou crossed paths…

ALS in home technology assistance

Learn About Care Services Update

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HOME VISITS Our local Care Services team is excited to offer in-person home visits once again throughout our region. We no longer require waivers or precautions, but safety remains our…

Walk to Defeat ALS Long Island Team posing for picture in park

For the Love of Jemma – Family Raises Over $2 Million For ALS Research

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Long Island Walk to Defeat ALS Team on their 18-Year Quest to Conquer the Disease, Raises Over $2 Million for Research For the past 18 years, countless family members and…

New Jersey State Budget Allocates $1.5 Million in State Budget for Those Living with ALS.

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The Greater New York Chapter and The Philadelphia Chapter of The ALS Association extended their heartfelt gratitude to the New Jersey State Legislature and Governor Murphy for their commitment to…

Legislature Should Pass Genetic Testing Protections for Insured

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Currently, insurance companies in New York can charge higher premiums or deny coverage based on genetic test results. It’s a shocking reality affecting individuals and families living with ALS, also…

ALS Month – Spotlight on Our Clinics

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May is ALS Awareness Month and we’re excited to shed some light on the amazing work our clinic and care service teams do to bring renewed hope to families affected…

FDA Committee Recommends Accelerated Approval of Tofersen

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The Food and Drug Administration (FDA) held a virtual meeting of the Peripheral and Central Nervous System Drugs Advisory Committee on March 22, 2023, to review data supporting tofersen’s New…

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