News & Publications
On Monday, November 6th, the ALS community came together to commemorate the remarkable progress in ALS research and the ever-evolving landscape of care for those contending with this devastating disease…
Accessing essential healthcare services is fundamental, but for many ALS patients and their families, travel can be an insurmountable challenge. The hustle and bustle of daily life can be daunting,…
We are absolutely thrilled to shine a spotlight on Her ALS Story at the upcoming Lou Gehrig Legacy Gala, taking place on November 6th at Pier Sixty in New York…
In 2022, Lou was diagnosed with ALS. However, a little over twenty years ago a love story of art and poetry began. Back in 2002, Mary and Lou crossed paths…
HOME VISITS Our local Care Services team is excited to offer in-person home visits once again throughout our region. We no longer require waivers or precautions, but safety remains our…
Long Island Walk to Defeat ALS Team on their 18-Year Quest to Conquer the Disease, Raises Over $2 Million for Research For the past 18 years, countless family members and…
The Greater New York Chapter and The Philadelphia Chapter of The ALS Association extended their heartfelt gratitude to the New Jersey State Legislature and Governor Murphy for their commitment to…
Currently, insurance companies in New York can charge higher premiums or deny coverage based on genetic test results. It’s a shocking reality affecting individuals and families living with ALS, also…
May is ALS Awareness Month and we’re excited to shed some light on the amazing work our clinic and care service teams do to bring renewed hope to families affected…
The Food and Drug Administration (FDA) held a virtual meeting of the Peripheral and Central Nervous System Drugs Advisory Committee on March 22, 2023, to review data supporting tofersen’s New…
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