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Learn About Care Services Update

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HOME VISITS Our local Care Services team is excited to offer in-person home visits once again throughout our region. We no longer require waivers or precautions, but safety remains our…

Walk to Defeat ALS Long Island Team posing for picture in park

For the Love of Jemma – Family Raises Over $2 Million For ALS Research

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Long Island Walk to Defeat ALS Team on their 18-Year Quest to Conquer the Disease, Raises Over $2 Million for Research For the past 18 years, countless family members and…

New Jersey State Budget Allocates $1.5 Million in State Budget for Those Living with ALS.

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The Greater New York Chapter and The Philadelphia Chapter of The ALS Association extended their heartfelt gratitude to the New Jersey State Legislature and Governor Murphy for their commitment to…

Legislature Should Pass Genetic Testing Protections for Insured

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Currently, insurance companies in New York can charge higher premiums or deny coverage based on genetic test results. It’s a shocking reality affecting individuals and families living with ALS, also…

ALS Month – Spotlight on Our Clinics

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May is ALS Awareness Month and we’re excited to shed some light on the amazing work our clinic and care service teams do to bring renewed hope to families affected…

FDA Committee Recommends Accelerated Approval of Tofersen

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The Food and Drug Administration (FDA) held a virtual meeting of the Peripheral and Central Nervous System Drugs Advisory Committee on March 22, 2023, to review data supporting tofersen’s New…

A Kick In the Butt

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When we both retired from long careers, my wife and I decided we had enough of New Jersey winters, so we purchased a second home in Florida. We have been…

The Greater New York Chapter Receives a $30,000 Quality of Life Grant from The Christopher & Dana Reeve Foundation

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The ALS Association Greater New York Chapter is proud to announce that it has been awarded $30,000 as part of the Christopher & Dana Reeve Foundation National Paralysis Resource Center…

November is National Family Caregivers Month

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It is a very tricky business being a caregiver to an ALS patient; you must manage your time wisely, keep an eye and mind on signs/symptoms, be forward-thinking, yet still…

Roberta Flack Announces She Has ALS

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NPR – The beloved singer Roberta Flack has announced through a spokesperson that she is battling ALS. The brain disease called amyotrophic lateral sclerosis, or popularly known as Lou Gehrig’s…

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