News & Publications

New Hobbies & Joys of Expression

Comments Off on New Hobbies & Joys of Expression

Gene and his wife, Meredith who is living with ALS, have been spending the winter in Florida. While there, they engaged a local artist to teach Meredith watercolor painting. It…

Loving Each Other Even More

Comments Off on Loving Each Other Even More

Philip Pellerito and Venera (Vera) met in high school when he first arrived in New York from Italy. He said the first thing he loved about Vera was her beautiful…

Gluck Family Matching Gift Challenge

Comments Off on Gluck Family Matching Gift Challenge

We are extremely honored to announce a matching gift challenge of up to $200,000, made possible by the Gluck Family Foundation. They have generously agreed to match every donation, dollar-for-dollar,…

Caregiving is a Full-time Job

Comments Off on Caregiving is a Full-time Job

In 2018, Randie was working two jobs, one as a personal chef, and the other as a chef for a New Jersey hospital system. However, after experiencing some slurred speech…

A Matter of the Heart

Comments Off on A Matter of the Heart

It was a sunny Saturday morning when my dad said to me “Go get ready. We are going to pick up mommy and the baby.”  That was the day I…

Whatever It Takes

Comments Off on Whatever It Takes

As is true for so many with ALS, the symptoms appeared out of nowhere. Kerry Falzone’s father, Andy, an avid mountain bike rider, self-taught guitar player, and long-time carpenter was…

Take Me Out to the Ballgame

Comments Off on Take Me Out to the Ballgame

The year is 2000. It’s a spring day in New York. A baseball game is about to begin. Brosius is playing third and Pettitte is on the mound. But this…

Diagnosed with ALS at 33 – Scott Gingold

Comments Off on Diagnosed with ALS at 33 – Scott Gingold

“I grew up in Stony Brook, NY, and graduated from the School of Visual Arts in NYC for computer art. I worked as a graphic designer, animator, and cartoonist. I…

Donald Land – Master Gardener

Comments Off on Donald Land – Master Gardener

Feeling yourself slipping away, dropping tools, and slowly disconnecting from the life and the love you had for gardening is the most traumatic part of this horrible disease. I’ve helped…

ALS Will Not Stop Our Love

Comments Off on ALS Will Not Stop Our Love

Sandy and I dated over 20 years ago. I was waitressing during my college years when Sandy entered my life. He had come to the restaurant to start his management…

Publications

Archives