News & Publications
FEDERAL Staff from ALS United Greater New York, traveled to Washington D.C. on April 30th, where they met with New Jersey patient advocate Melanie Craig, accompanied by her husband and…
ALS United and its dedicated member organizations have made a significant step in the fight against Amyotrophic Lateral Sclerosis (ALS) by supporting the Accelerating Medicines Partnership (AMP) ALS initiative. This…
ALS United Greater New York proudly unveiled our new series, “Conversations With…,” earlier this year with two episodes. This series delves into the hard decisions and personal experiences of living…
ALS United Greater New York expresses its gratitude to Congress for passing the bipartisan Federal Aviation Administration reauthorization bill. This legislation marks a significant step forward in improving accessibility in…
In January, David Redden and his wife Jeannette, a couple deeply committed to the Hudson Valley, were honored with the prestigious Franny Reese Medal by Scenic Hudson. Despite facing the new…
As an inner-city youth from El Barrio, also known as East Harlem, I was blessed to have found love in the beautiful sport of softball. The sport kept me active,…
At ALS United Greater New York, we believe in empowering individuals and families impacted by Amyotrophic Lateral Sclerosis (ALS)—often referred to as Lou Gehrig’s disease—with comprehensive care, pioneering research, and…
ALS United Greater New York’s Care Service Team has some of the most caring and experienced local staff working with those living with ALS in the greater New York region.…
New York Governor Kathy Hochul has taken a bold step in the fight against Amyotrophic Lateral Sclerosis (ALS) by proposing a groundbreaking $25 million allocation for ALS research in her…
On Monday, November 6th, the ALS community came together to commemorate the remarkable progress in ALS research and the ever-evolving landscape of care for those contending with this devastating disease…
Publications
- FY 2026 Federal Funding Requests
- Cuts to NIH Letter
- 2024 Year in Review
- Fall 2024 Newsletter
- Summer 2024 Newsletter
- Spring 2024 Newsletter
- 2023 Year in Review
- Fall 2023 Newsletter
- Summer 2023 Newsletter
- Spring 2023 Newsletter
- 2022 Year In Review
- Fall 2022 Newsletter
- 2021 Year In Review
- Fall 2021 Newsletter
- Summer 2021 Newsletter
- Winter 2021 Newsletter
- Fall 2020 Newsletter
- Summer 2020 Newsletter