News & Publications

Your Voice Matters

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FEDERAL Staff from ALS United Greater New York, traveled to Washington D.C. on April 30th, where they met with New Jersey patient advocate Melanie Craig, accompanied by her husband and…

Research News

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ALS United and its dedicated member organizations have made a significant step in the fight against Amyotrophic Lateral Sclerosis (ALS) by supporting the Accelerating Medicines Partnership (AMP) ALS initiative. This…

Care Services Presents New Series

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ALS United Greater New York proudly unveiled our new series, “Conversations With…,” earlier this year with two episodes. This series delves into the hard decisions and personal experiences of living…

New FAA Rules to Make Travel More Accessible

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ALS United Greater New York expresses its gratitude to Congress for passing the bipartisan Federal Aviation Administration reauthorization bill. This legislation marks a significant step forward in improving accessibility in…

David and Jeannette Redden

Giving Back

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In January, David Redden and his wife Jeannette, a couple deeply committed to the Hudson Valley, were honored with the prestigious Franny Reese Medal by Scenic Hudson. Despite facing the new…

young person with ALS and her friend

From Softball Rivals to Sisters: ALS Can’t Stop Friendship by Vaughnée T. Simmons

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As an inner-city youth from El Barrio, also known as East Harlem, I was blessed to have found love in the beautiful sport of softball. The sport kept me active,…

collage of people with ALS

Understanding ALS: An In-Depth Look

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At ALS United Greater New York, we believe in empowering individuals and families impacted by Amyotrophic Lateral Sclerosis (ALS)—often referred to as Lou Gehrig’s disease—with comprehensive care, pioneering research, and…

ALS social worker

Care Services Team Spotlight: Michelle McKenzie

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ALS United Greater New York’s Care Service Team has some of the most caring and experienced local staff working with those living with ALS in the greater New York region.…

Governor Hochul Proposes $25 Million for ALS Research in State Budget

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New York Governor Kathy Hochul has taken a bold step in the fight against Amyotrophic Lateral Sclerosis (ALS) by proposing a groundbreaking $25 million allocation for ALS research in her…

Lou Gehrig Legacy Gala Raises Over $500,000

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On Monday, November 6th, the ALS community came together to commemorate the remarkable progress in ALS research and the ever-evolving landscape of care for those contending with this devastating disease…

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