News & Publications

The Greater New York Chapter and The Philadelphia Chapter of The ALS Association extended their heartfelt gratitude to the New Jersey State Legislature and Governor Murphy for their commitment to…

Currently, insurance companies in New York can charge higher premiums or deny coverage based on genetic test results. It’s a shocking reality affecting individuals and families living with ALS, also…

May is ALS Awareness Month and we’re excited to shed some light on the amazing work our clinic and care service teams do to bring renewed hope to families affected…

The Food and Drug Administration (FDA) held a virtual meeting of the Peripheral and Central Nervous System Drugs Advisory Committee on March 22, 2023, to review data supporting tofersen’s New…

When we both retired from long careers, my wife and I decided we had enough of New Jersey winters, so we purchased a second home in Florida. We have been…

It is a very tricky business being a caregiver to an ALS patient; you must manage your time wisely, keep an eye and mind on signs/symptoms, be forward-thinking, yet still…

NPR – The beloved singer Roberta Flack has announced through a spokesperson that she is battling ALS. The brain disease called amyotrophic lateral sclerosis, or popularly known as Lou Gehrig’s…

On Veterans Day we celebrated the service of our nation’s heroes and military veterans who have served in the U.S. Armed Forces. In order to improve the lives of Veterans…

February 13, 2020, is the date our world turned upside down. After months of visits to doctors and specialists, MRIs and other tests, and a neurologist who said it was…