News & Publications

February 13, 2020, is the date our world turned upside down. After months of visits to doctors and specialists, MRIs and other tests, and a neurologist who said it was…

On September 29th, the FDA approved AMX0035 (now known as Relyvrio) to treat people living with ALS. Relyvrio, while not a cure, is a victory for the entire ALS community…

This May, as we recognize ALS Awareness Month, let us honor those who give us hope. Our loved ones, caregivers, friends, neighbors, family, nurses, social workers, or doctors. The people…

Gene and his wife, Meredith who is living with ALS, have been spending the winter in Florida. While there, they engaged a local artist to teach Meredith watercolor painting. It…

Philip Pellerito and Venera (Vera) met in high school when he first arrived in New York from Italy. He said the first thing he loved about Vera was her beautiful…

We are extremely honored to announce a matching gift challenge of up to $200,000, made possible by the Gluck Family Foundation. They have generously agreed to match every donation, dollar-for-dollar,…

In 2018, Randie was working two jobs, one as a personal chef, and the other as a chef for a New Jersey hospital system. However, after experiencing some slurred speech…

It was a sunny Saturday morning when my dad said to me “Go get ready. We are going to pick up mommy and the baby.”  That was the day I…

As is true for so many with ALS, the symptoms appeared out of nowhere. Kerry Falzone’s father, Andy, an avid mountain bike rider, self-taught guitar player, and long-time carpenter was…