News & Publications

The Food and Drug Administration (FDA) held a virtual meeting of the Peripheral and Central Nervous System Drugs Advisory Committee on March 22, 2023, to review data supporting tofersen’s New…

When we both retired from long careers, my wife and I decided we had enough of New Jersey winters, so we purchased a second home in Florida. We have been…

It is a very tricky business being a caregiver to an ALS patient; you must manage your time wisely, keep an eye and mind on signs/symptoms, be forward-thinking, yet still…

NPR – The beloved singer Roberta Flack has announced through a spokesperson that she is battling ALS. The brain disease called amyotrophic lateral sclerosis, or popularly known as Lou Gehrig’s…

On Veterans Day we celebrated the service of our nation’s heroes and military veterans who have served in the U.S. Armed Forces. In order to improve the lives of Veterans…

February 13, 2020, is the date our world turned upside down. After months of visits to doctors and specialists, MRIs and other tests, and a neurologist who said it was…

On September 29th, the FDA approved AMX0035 (now known as Relyvrio) to treat people living with ALS. Relyvrio, while not a cure, is a victory for the entire ALS community…

This May, as we recognize ALS Awareness Month, let us honor those who give us hope. Our loved ones, caregivers, friends, neighbors, family, nurses, social workers, or doctors. The people…